5/25/2017
So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary.
As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built for comfort. For now, he can sleep for several hours at a time but has to wake up to take medications so his pain doesn't get out of control.
Today he chilled downstairs for a while and watched a movie with a friend, and then later he came down for the Buffalo Wild Wings he requested for dinner. We wanted him to eat whatever he wanted today because he will be going back to the hospital for chemo treatment tomorrow morning. No food after midnight and nothing but pills and a swallow of water in the morning.
Tomorrow he will be receiving 3 different chemotherapy drugs through the port in his chest. He will also have a lumbar puncture to make sure there isn't any cancer in his spinal fluid as of now. The doctors will also put a small infusion of chemo directly into his spine.
Visits from his friends really lift his spirits. I don't think the friends necessarily enjoy us wiping them down with Clorox wipes and making them use gallons of hand sanitizer, but that's just how it is right now haha!
We will give you an update after his treatment tomorrow. Please keep Wil in your thoughts and send good vibes his way, as he will be extremely sore and not feeling too great after the lumbar puncture, the reaccessing of his port lines and the chemo.
Much love to everyone...
So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary.
As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built for comfort. For now, he can sleep for several hours at a time but has to wake up to take medications so his pain doesn't get out of control.
Today he chilled downstairs for a while and watched a movie with a friend, and then later he came down for the Buffalo Wild Wings he requested for dinner. We wanted him to eat whatever he wanted today because he will be going back to the hospital for chemo treatment tomorrow morning. No food after midnight and nothing but pills and a swallow of water in the morning.
Tomorrow he will be receiving 3 different chemotherapy drugs through the port in his chest. He will also have a lumbar puncture to make sure there isn't any cancer in his spinal fluid as of now. The doctors will also put a small infusion of chemo directly into his spine.
Visits from his friends really lift his spirits. I don't think the friends necessarily enjoy us wiping them down with Clorox wipes and making them use gallons of hand sanitizer, but that's just how it is right now haha!
We will give you an update after his treatment tomorrow. Please keep Wil in your thoughts and send good vibes his way, as he will be extremely sore and not feeling too great after the lumbar puncture, the reaccessing of his port lines and the chemo.
Much love to everyone...
Sending good vibes to you, Wil! one of my all time favorite 4th graders! 😍
ReplyDeletePositive energy coming your way.....
ReplyDeleteThinking of you guys and sending lots of prayers for Wil!! We bought a thick memory foam, for the hospital bed, while Brian was in Siteman for his stem cell transplant. It really helped make the hospital bed more comfortable. Hopefully Wil will not have extended hospitalizations, home is the best thing for him!
ReplyDeleteHang in there Wil!! We will keep praying for you!!
Love, the Parmeleys