ALL in for Wil

Facebook post: Day 13/14- Rough day yesterday. A routine check in (is there such a thing with cancer?) ended up being a 7 hour stay. Wil needed more platelets and two blood transfusions. Hemoglobin was 7 and platelets were 7. White blood cells were 1. Extras thanks to the nurses who stayed 3 hours after their shift so he didn't have to be admitted 😍 . He had a restless night, super sweaty. Having a hard time regulating his body temperature with the chemo. Having a much better day today! He is  down 22 pounds, but his appetite is back today with a vengeance (guess actually having blood does that to you  :) , can't keep enough meat in front of him. The doctor did say you can donate platelets specifically for him, you just have to give his name and say he is being treated at the Cardinals Children's Cancer center at St John's Mercy in St Louis, MO. If he doesn't use them they will be released to general population. Wil's warriors the past 24 hours (seriou

First off thank you to all who gave the ultimate sacrifice for our country. Wil had a fairly easy night. He slept 6 hours was up for one and then slept for another 2. He was in good spirits this morning and ate a good breakfast. He is complaining of a lot of jaw pain so eating is sometime a challenge. This afternoon we got out of the house and went for a drive through lone elk park. He still can not sit up for long, but laying down in the car seemed to work. He got a headache from the sun though (UGH). MUCH love to John A for taking care of my patio. So now I don't have to feel bad when people come to visit and they can not come in the house. FACEBOOK today: I am completely humbled by how much love we are receiving and we will pay it all forward. Here is Wil playing soccer last month and if you look over his shoulder you see one of his soccer dads  John Ackfeld  who is always looking out for Wil, and today was no exception, much love for you today John, much love. Als

FACEBOOK 5/17/17 Kate scored in her soccer game! (just to let you know my life was normal) 5/18/17 My world  ❤️  "Where there is a Wil there is a way"  # cancersucks   # leukemia  (pm me for details cause there ain't no good way to tell this story  ;)  BEST FAMILY AND FRIENDS EVER! 5/21/17 Blessed with amazing women in my life, none more than these two whom I get to call sisters  ❤️   # cancersucks   Sara Ryan   Amy Selter 5/21/17 No need to worry about the next generation, they're pretty fabulous already.  # friends   # gang   # strengthinnumbers 5/22/17 Wil, Chris, Kristen, Kate, and I am overwhelmed with the love and support from family, friends, Lindbergh, and our Soccer family, as well as total strangers.  Brandi Lea  is an amazing bff and the kindest person you could ever meet and she knows how deep my love for her runs. For everyone else, as my sisters say, "no words, just all the feels" Our learning curve is steep a

This is the image that I will forever associate with Day 1. This was taken 2 hours after we were given the diagnosis of cancer, Leukemia. They were walking Wil to the Pediatric ICU to immediately start treatments, he already had in an IV. We had no idea what was coming our way but these three knew they would face it together.  Thursday, May 18, 2017 (the short version) The day started out like any other. Teenagers who didn't want to go to school, mom with too much to do at work. Wil had been fighting a cold for weeks and the antibiotic wasn't working so we switched to a zpac and it was still not working. He showed me a dozen sores in his mouth and I kinda freaked out thinking he was having an allergic reaction to the new meds and I said I would call the doctor as soon as they opened. At 8:00 they said come in at 9:00. I really thought we were going for a routine check. Wil was very lethargic and told me there was no way he could drive from LHS to Sperreng as his visi

5/28/17 Today was an ok day. And in Wil terms that is better than a bad day! Many thanks to Brandi for starting this blog. I am going to try to copy and paste some things from facebook, but I will still post there. Here is probably where you will come to read way too much from Brandi and I (or my sisters when they are able). Today he ate well and only has indigestion. He is down 22 pounds so we are trying to get him to eat, but he gets full quickly. He has downloaded minecraft and has been schooling Brandi on the art of minecraft, from blue sheep to digging for diamonds. It has been a great distraction. Grandma & Grandpa Ohler and Uncle Colin came to visit today. Wil was able to sit up for about 5 minutes with his mask on and visit. Chris had a long visit with them last night and they sat on the patio visiting all afternoon. Ava's cousin also came by to visit. We are strictly limiting the visitors in the house as his white blood cells are falling now. John Ackfeld,

This is Wil.

5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built