7/28/17 really want to post good news

I really want to post good updates! He has had very few good moments the past ten weeks... and he still has very difficult parts of treatment to come! And even when he has ok hours... he still has leukemia, that heaviness never goes away. Last night was rough, had an allergic reaction at his port site and was projectile vomiting.

Feeling frustrated but I'm really hoping for Murphy's law to go into effect that if I post the bad stuff he will have a good weekend! 🤞🏼~*~*~sprinkling good vibes everywhere~*~*~

All that said, we are very blessed. He may not be sailing through treatment, but he's NOT the worst either. It is so good to have perspective. I know that there is HOPE. He will come through this stronger mentally and physically. Now if he would just wake up and be feeling good...

Thankful for #wilswarriors Sherry Zehner , Maggie Huffman , Julie Cuba Jenkins , Sugarfire 44 , Tara McMahon , Becky Brickson Austermann , Guarantee Electrical Company , Erica Hoffman , Anuja Benegal , Rita Navarro Hagen , Sandy Geerling , Michelle St , Gera family and others that I always leave out because my brain is mush!

The texts (you know who u are for putting up with my crazy text messages) and calls and funny memes and middle of the night messages 😂 ... and always family, my cousins ❤️ Patti Hauschild Hoffman , Kristine Michelle , Alan, Cori Rochelle , & Chris's parents Richard & Avanell Ohler and Uncle Colin, who all got us through this rough week 😘 ...

Now wake up happy and feeling good Wil 😍

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Breathing is NOT optional-Saturday

Saturday update: Wil had an allergic reaction last night and stopped breathing. The medical team and Kristen Josephine were amazing they bagge d him and gave him shots to open his airway. It was terrifying. He is shaken but doing ok. Very grateful for the amazing staff at the PICU.

5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built...

Happy 17th birthday, Wil!

Happy Birthday, Wil Ohler ! I am so lucky to be your mom. You fill our lives with laughter and show us what real strength is. Yesterday they celebrated with him at the cancer center when he came in for chemo. To say that you should never take life for granted has taken on a whole new meaning. I ask for prayers for the little ones who won't be celebrating another birthday. Send their families your light and energy for strength and peace. For Wil we ask that you do something today for someone else who will never be able to pay you back, spread kindness, love, and of course laughter. # wilswarriors # wilwins

ALL in for Wil

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