7/28/17 really want to post good news

I really want to post good updates! He has had very few good moments the past ten weeks... and he still has very difficult parts of treatment to come! And even when he has ok hours... he still has leukemia, that heaviness never goes away. Last night was rough, had an allergic reaction at his port site and was projectile vomiting.

Feeling frustrated but I'm really hoping for Murphy's law to go into effect that if I post the bad stuff he will have a good weekend! 🤞🏼~*~*~sprinkling good vibes everywhere~*~*~

All that said, we are very blessed. He may not be sailing through treatment, but he's NOT the worst either. It is so good to have perspective. I know that there is HOPE. He will come through this stronger mentally and physically. Now if he would just wake up and be feeling good...

Thankful for #wilswarriors Sherry Zehner , Maggie Huffman , Julie Cuba Jenkins , Sugarfire 44 , Tara McMahon , Becky Brickson Austermann , Guarantee Electrical Company , Erica Hoffman , Anuja Benegal , Rita Navarro Hagen , Sandy Geerling , Michelle St , Gera family and others that I always leave out because my brain is mush!

The texts (you know who u are for putting up with my crazy text messages) and calls and funny memes and middle of the night messages 😂 ... and always family, my cousins ❤️ Patti Hauschild Hoffman , Kristine Michelle , Alan, Cori Rochelle , & Chris's parents Richard & Avanell Ohler and Uncle Colin, who all got us through this rough week 😘 ...

Now wake up happy and feeling good Wil 😍

Comments

Please follow on facebook

Sorry that I have not updated here as I can not do it from my phone. Wil was in the hospital 2 weeks in April and then on his Make a Wish trip the first week of May. Please follow Wil's story on facebook "Wil Ohler's fight with leukemia #wilswarriors" https://www.facebook.com/Wil-Ohlers-fight-with-leukemia-wilswarriors-174102950041537/

5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built

Make A Wish soccer game

It has been awhile since I updated here. It is much easier to do from Facebook if you can follow his story there. CLICK HERE Wil has been struggling with the effects of chemotheraphy. The chemo has not been kind to his stomach, gallbladder, liver, or head. The good day was his MAKE A WISH faculty soccer game. March 15, 2018 Our family is humbled by the support of Wil and the Make A Wish foundation. Thank you from the bottom of our overflowing hearts, we love being a FLYER! -Thank you to Lori Condellire, Susan Dooling, & Beth Johnston for sharing pictures! A few members of the StepUp of St. Louis Teen Coalition presented a check from their budget for $100 to be used for Wil's Wish fundraising at the soccer game to day! So cool to see these kids in action. Way to go Truman Middle School for organizing such a fun afternoon. # wilswarriors # stepupstl

ALL in for Wil

Search This Blog