Friends with Cancer

Wil visited with 2 new friends who are in the hospital today fighting their battles with cancer. Their conversations reminded me of this picture... how only sometimes someone who is going through what you are can really get it. #cancersucks

from: TRUTH 365
Trading Places…Last year we introduced Lily Weaver (left) and Sadie Keller through The Truth 365. Lily was 5 years cancer-free and Sadie was in the middle of her battle. Today the roles are reversed. Lily relapsed and Sadie has finished treatment. We took this photo of the girls today. Sadie lives in Texas but was in Virginia for our friendSadie Murata's Celebration of Life this weekend.

We asked Lily and Sadie what this image represents to them and here is what they had to say.

Sadie says, “To me this photo shows how hard cancer is and how much support you need to face it. Only 6 months ago Lily was there for me as I was fighting cancer. Now, I am done with my chemotherapy, (hopefully forever), and Lily is in her fight again. I am glad I can be there for my friend now. You can’t do this alone.”

Lily says, “I don't understand why kids keep facing cancer. Isn't once enough?”

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Breathing is NOT optional-Saturday

Saturday update: Wil had an allergic reaction last night and stopped breathing. The medical team and Kristen Josephine were amazing they bagge d him and gave him shots to open his airway. It was terrifying. He is shaken but doing ok. Very grateful for the amazing staff at the PICU.

Please follow on facebook

Sorry that I have not updated here as I can not do it from my phone. Wil was in the hospital 2 weeks in April and then on his Make a Wish trip the first week of May. Please follow Wil's story on facebook "Wil Ohler's fight with leukemia #wilswarriors" https://www.facebook.com/Wil-Ohlers-fight-with-leukemia-wilswarriors-174102950041537/

5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built...

ALL in for Wil

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