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Chemo Monday


Another Monday, another round of chemo. As this phase of treatment winds down, there will be less visits to the clinic for IV chemo or at least not every day or every other day, which seems like we have been doing forever (almost 7 months). Needless to say everyone is going to be a little lost without having nurses and the wonderful people at the office checking in on us all the time.

Yesterday the staff gave Wil a soccer player Nutcracker for his collection (I will add his picture). They are so good to him. I put hearts on the nurses face to protect them, not because they don't want to be on the blog. They have truly been a lifesaver, putting up with my  man-child and all his antics. They recognize his subtleties and his not so subtle changes in health and his emotions. They have never made him feel bad for being a kid (when he obviously doesn't look like one) and are always the first ones to tease him when he is feeling down. Wil is going to miss their attention the most!  I'm having a bit of anxiety too as it is nice to have people to talk to that understand the emotional pain that comes from this diagnosis and it is awesome to talk medical stuff with people who get it, as I am always checking his numbers.

My mom is also leaving this week, so Wednesday will be her last day at the cancer clinic with Wil.  Without my mom we will not have daily care for Wil, but we are hopeful that with less heavy chemo will come less sickness. Bushia (is what we all call her, Polish for grandma) is going to miss being here every day and seeing first hand how he is doing. I am sure there will be several trips back to STL for shorter stays and plenty of facetime.

Our life will never go back to the way it was before, but we are looking forward to what comes next. Wil is going to have 6 days without chemo next week and his body is ready for a break!

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Make A Wish soccer game

It has been awhile since I updated here. It is much easier to do from Facebook if you can follow his story there. CLICK HERE Wil has been struggling with the effects of chemotheraphy. The chemo has not been kind to his stomach, gallbladder, liver, or head. The good day was his MAKE A WISH faculty soccer game. March 15, 2018 Our family is humbled by the support of Wil and the Make A Wish foundation. Thank you from the bottom of our overflowing hearts, we love being a FLYER! -Thank you to Lori Condellire, Susan Dooling, & Beth Johnston for sharing pictures! A few members of the  StepUp  of St. Louis Teen Coalition presented a check from their budget for $100 to be used for Wil's Wish fundraising at the soccer game to day! So cool to see these kids in action. Way to go  Truman Middle School  for organizing such a fun afternoon.  # wilswarriors   # stepupstl