Make counts, will travel

Monday, Dec 18-Friday, Dec 22

Wil's counts were low on Monday need to be up to 800 to travel on Friday.

Happy to report Wil has not thrown up today!! (And yes I realize I probably just jinxed myself

😳) Tomorrow we need his numbers to start rebounding (aka MAKE SOME BLOOD) so he can get rid of this continual headache and enjoy the chemo free week.

How very fitting that today is the Winter Solstice! Starting tomorrow the amount of sunlight gets longer, it doesn’t happen all at once and there are so many cold and dark days ahead, but we know summer is coming. Very fitting as today is Wil’s last day in frontline treatment. We know he has 3 long years ahead of him but it is coming. I am equal parts excited and terrified!

Last I heard Frank Cusumano is airing Wil’s story on channel 5 at 10:00 tonight. I am hoping that it gives anyone struggling hope for the future. Happy Winter Solstice!

Comments

Please follow on facebook

Sorry that I have not updated here as I can not do it from my phone. Wil was in the hospital 2 weeks in April and then on his Make a Wish trip the first week of May. Please follow Wil's story on facebook "Wil Ohler's fight with leukemia #wilswarriors" https://www.facebook.com/Wil-Ohlers-fight-with-leukemia-wilswarriors-174102950041537/

5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built...

Cardinals Fantasy Camp 2018

"Sports is all I've known." - Wil Ohler Cardinals Fantasy Camp 2018 I will never be able to truly explain what this trip meant to me, but I do know what Wil misses most of all about soccer is the relationships. He is a very talented, competitive athlete who was/is wide open on most occasions. He loves everything about sports and soccer in particular. He has more random sports stats and facts in his head than should really be possible. But what he misses the most is the bonding (laughing, jaw jacking, rough housing, inside jokes, etc) that happens when you are part of a team. He just didn't really know it until it was gone and he got to have a small bit of that back on this trip. I will be forever grateful to Dr Rob and the Cardinals, every former Cardinals legend in attendance and every camper who attended who ALL took time to give Wil words of encouragement (as well as donate lots of money for research for teenage Leukemia). A few things about traveling with a c...

ALL in for Wil

Search This Blog