Make counts, will travel

Monday, Dec 18-Friday, Dec 22

Wil's counts were low on Monday need to be up to 800 to travel on Friday.

Happy to report Wil has not thrown up today!! (And yes I realize I probably just jinxed myself

😳) Tomorrow we need his numbers to start rebounding (aka MAKE SOME BLOOD) so he can get rid of this continual headache and enjoy the chemo free week.

How very fitting that today is the Winter Solstice! Starting tomorrow the amount of sunlight gets longer, it doesn’t happen all at once and there are so many cold and dark days ahead, but we know summer is coming. Very fitting as today is Wil’s last day in frontline treatment. We know he has 3 long years ahead of him but it is coming. I am equal parts excited and terrified!

Last I heard Frank Cusumano is airing Wil’s story on channel 5 at 10:00 tonight. I am hoping that it gives anyone struggling hope for the future. Happy Winter Solstice!

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Breathing is NOT optional-Saturday

Saturday update: Wil had an allergic reaction last night and stopped breathing. The medical team and Kristen Josephine were amazing they bagge d him and gave him shots to open his airway. It was terrifying. He is shaken but doing ok. Very grateful for the amazing staff at the PICU.

5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built...

Happy 17th birthday, Wil!

Happy Birthday, Wil Ohler ! I am so lucky to be your mom. You fill our lives with laughter and show us what real strength is. Yesterday they celebrated with him at the cancer center when he came in for chemo. To say that you should never take life for granted has taken on a whole new meaning. I ask for prayers for the little ones who won't be celebrating another birthday. Send their families your light and energy for strength and peace. For Wil we ask that you do something today for someone else who will never be able to pay you back, spread kindness, love, and of course laughter. # wilswarriors # wilwins

ALL in for Wil

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