Jan 8 Monday Monday

Let's start off with the good news from the weekend. Wil is calling it DAY ONE, he went to the pool and swam laps. Not sure I'm allowed to publish the amount, but let's just say the kid is competitive even when he has done nothing for 8 months. There are no actual pictures of this swim as I was trying to think good thoughts about him not drowning!

And as long as we are being positive, I heard good news from the insurance company after arguing over a $133,000 bill that they are cutting a check! Trust me if you ever wanna complain about insurance, I'm in and will bring wine.

AND on to Monday...Wil woke up at 3 am with heavy night sweats. We got new sheets and covers and he did not have a fever so he went back to sleep. I was able to get up and go to work in the morning while he was asleep, but got a phone call of Wil puking loudly into the phone. AHHHH the joy of a teenager on chemo. He did not have a fever, but we can not keep him warm and he has constant goosebumps and a headache. He was able to keep a few crackers down this afternoon and hopefully this is all just a result of the high dose of chemo he took last night before bed.

Comments

Please follow on facebook

Sorry that I have not updated here as I can not do it from my phone. Wil was in the hospital 2 weeks in April and then on his Make a Wish trip the first week of May. Please follow Wil's story on facebook "Wil Ohler's fight with leukemia #wilswarriors" https://www.facebook.com/Wil-Ohlers-fight-with-leukemia-wilswarriors-174102950041537/

5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built

Make A Wish soccer game

It has been awhile since I updated here. It is much easier to do from Facebook if you can follow his story there. CLICK HERE Wil has been struggling with the effects of chemotheraphy. The chemo has not been kind to his stomach, gallbladder, liver, or head. The good day was his MAKE A WISH faculty soccer game. March 15, 2018 Our family is humbled by the support of Wil and the Make A Wish foundation. Thank you from the bottom of our overflowing hearts, we love being a FLYER! -Thank you to Lori Condellire, Susan Dooling, & Beth Johnston for sharing pictures! A few members of the StepUp of St. Louis Teen Coalition presented a check from their budget for $100 to be used for Wil's Wish fundraising at the soccer game to day! So cool to see these kids in action. Way to go Truman Middle School for organizing such a fun afternoon. # wilswarriors # stepupstl

ALL in for Wil

Search This Blog