Jan 8 Monday Monday

Let's start off with the good news from the weekend. Wil is calling it DAY ONE, he went to the pool and swam laps. Not sure I'm allowed to publish the amount, but let's just say the kid is competitive even when he has done nothing for 8 months. There are no actual pictures of this swim as I was trying to think good thoughts about him not drowning!

And as long as we are being positive, I heard good news from the insurance company after arguing over a $133,000 bill that they are cutting a check! Trust me if you ever wanna complain about insurance, I'm in and will bring wine.

AND on to Monday...Wil woke up at 3 am with heavy night sweats. We got new sheets and covers and he did not have a fever so he went back to sleep. I was able to get up and go to work in the morning while he was asleep, but got a phone call of Wil puking loudly into the phone. AHHHH the joy of a teenager on chemo. He did not have a fever, but we can not keep him warm and he has constant goosebumps and a headache. He was able to keep a few crackers down this afternoon and hopefully this is all just a result of the high dose of chemo he took last night before bed.

Comments

Breathing is NOT optional-Saturday

Saturday update: Wil had an allergic reaction last night and stopped breathing. The medical team and Kristen Josephine were amazing they bagge d him and gave him shots to open his airway. It was terrifying. He is shaken but doing ok. Very grateful for the amazing staff at the PICU.

5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built...

Happy 17th birthday, Wil!

Happy Birthday, Wil Ohler ! I am so lucky to be your mom. You fill our lives with laughter and show us what real strength is. Yesterday they celebrated with him at the cancer center when he came in for chemo. To say that you should never take life for granted has taken on a whole new meaning. I ask for prayers for the little ones who won't be celebrating another birthday. Send their families your light and energy for strength and peace. For Wil we ask that you do something today for someone else who will never be able to pay you back, spread kindness, love, and of course laughter. # wilswarriors # wilwins

ALL in for Wil

Search This Blog