Skip to main content

Chemo sucks

Wil has been dealing with issues related to his chemotheraphy.

March 27, 2018
Well we did not get the the test results we wanted the past 2 days. We will have more tests in the next 2 weeks and new medicines to try. Chemo has not been kind. As always Wil is a trooper and he will get through this with laughter and good hair. Thank you for all the well wishes.




MARCH 29, 2018
Wil had a rough night with chemo. He sweat through several beach towels. And has spent the mornIng throwing up. Nott much sleep going on at our house.
Chemo is NOT a solution to this horrible disease. Wil has had 11 different types of chemo in the past 10 months. They are not kind.
1. Vincristine (1961)
2. Daunorubicin
3. Doxorubicin
4. Cytarabine, also known as ara-C
5. L-asparaginase (Elspar), PEG-L-asparaginase (pegaspargase, Oncaspar)
6. Erwinia
7. 6-mercaptopurine (Purinethol)
8. 6-thioguanine
9. Methotrexate (1956)
10. Cyclophosphamide (1959)
11. Dexamethasone

March 31, 2018
After a rough week the pain finally was too much to manage at home. Wil is finally resting in the ER with a good combo of pain medication, although he did give us a little scare with his reaction to the first dose. All tests on his head look normal. Hopefully we will go home soon. #chemosucks

April 3, 2018
HIDO scan on Wil's gallbladder
Been a long morning already... few more hours of testing to go.

Comments

Post a Comment

Popular posts from this blog

Please follow on facebook

Sorry that I have not updated here as I can not do it from my phone. Wil was in the hospital 2 weeks in April and then on his Make a Wish trip the first week of May. Please follow Wil's story on facebook "Wil Ohler's fight with leukemia #wilswarriors" https://www.facebook.com/Wil-Ohlers-fight-with-leukemia-wilswarriors-174102950041537/
22 comments
Read more
5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built
3 comments
Read more

Cardinals Fantasy Camp 2018

"Sports is all I've known." - Wil Ohler Cardinals Fantasy Camp 2018 I will never be able to truly explain what this trip meant to me, but I do know what Wil misses most of all about soccer is the relationships. He is a very talented, competitive athlete who was/is wide open on most occasions. He loves everything about sports and soccer in particular. He has more random sports stats and facts in his head than should really be possible. But what he misses the most is the bonding (laughing, jaw jacking, rough housing, inside jokes, etc) that happens when you are part of a team. He just didn't really know it until it was gone and he got to have a small bit of that back on this trip. I will be forever grateful to Dr Rob and the Cardinals, every former Cardinals legend in attendance and every camper who attended who ALL took time to give Wil words of encouragement (as well as donate lots of money for research for teenage Leukemia). A few things about traveling with a c
2 comments
Read more