Skip to main content

Chemo sucks

Wil has been dealing with issues related to his chemotheraphy.

March 27, 2018
Well we did not get the the test results we wanted the past 2 days. We will have more tests in the next 2 weeks and new medicines to try. Chemo has not been kind. As always Wil is a trooper and he will get through this with laughter and good hair. Thank you for all the well wishes.




MARCH 29, 2018
Wil had a rough night with chemo. He sweat through several beach towels. And has spent the mornIng throwing up. Nott much sleep going on at our house.
Chemo is NOT a solution to this horrible disease. Wil has had 11 different types of chemo in the past 10 months. They are not kind.
1. Vincristine (1961)
2. Daunorubicin
3. Doxorubicin
4. Cytarabine, also known as ara-C
5. L-asparaginase (Elspar), PEG-L-asparaginase (pegaspargase, Oncaspar)
6. Erwinia
7. 6-mercaptopurine (Purinethol)
8. 6-thioguanine
9. Methotrexate (1956)
10. Cyclophosphamide (1959)
11. Dexamethasone

March 31, 2018
After a rough week the pain finally was too much to manage at home. Wil is finally resting in the ER with a good combo of pain medication, although he did give us a little scare with his reaction to the first dose. All tests on his head look normal. Hopefully we will go home soon. #chemosucks

April 3, 2018
HIDO scan on Wil's gallbladder
Been a long morning already... few more hours of testing to go.






Comments

Popular posts from this blog

Please follow on facebook

Sorry that I have not updated here as I can not do it from my phone. Wil was in the hospital 2 weeks in April and then on his Make a Wish trip the first week of May. Please follow Wil's story on facebook "Wil Ohler's fight with leukemia #wilswarriors" https://www.facebook.com/Wil-Ohlers-fight-with-leukemia-wilswarriors-174102950041537/

Make A Wish soccer game

It has been awhile since I updated here. It is much easier to do from Facebook if you can follow his story there. CLICK HERE Wil has been struggling with the effects of chemotheraphy. The chemo has not been kind to his stomach, gallbladder, liver, or head. The good day was his MAKE A WISH faculty soccer game. March 15, 2018 Our family is humbled by the support of Wil and the Make A Wish foundation. Thank you from the bottom of our overflowing hearts, we love being a FLYER! -Thank you to Lori Condellire, Susan Dooling, & Beth Johnston for sharing pictures! A few members of the  StepUp  of St. Louis Teen Coalition presented a check from their budget for $100 to be used for Wil's Wish fundraising at the soccer game to day! So cool to see these kids in action. Way to go  Truman Middle School  for organizing such a fun afternoon.  # wilswarriors   # stepupstl

Coaches vs Cancer

Hard to say how proud I am of this kid. Wil received the 2017 Stephanie Phillips Survivorship Award for outstanding courage and leadership in the fight against cancer. Huge Thanks to Coaches vs Cancer STL. We support their mission of raising awareness and funding. Coach Jason Wolfard at Lindbergh nominated Wil for this award and we are grateful to him and his entire coaching staff.  Staff at Coaches vs Cancer STL doing great work.  Yup, still proud (and let's be real, glad he didn't puke) F-L-Y...E-R-S Here is Wil's speech... Coaches vs Cancer Speech 2017 - Wil Ohler Thank you for this award.Thank you to Coach Wolfard for nominating me. Thank you to the family of Coach Stephanie Phillips, I’m sure her family misses her even more so during basketball season. Cancer is not a team anyone ever wants to join. The week before I received my leukemia diagnosis I was playing a soccer tournament in Chicago. Yes, I had been feeling bad for a very lo...