ALL in for Wil

A glimpse into our week at the hospital. Much love to sisters extraordinaire Kristen and Kate. Your brother will never forget your selfless acts of love this week. https://flipagram.com/f/1IFt2Dlg4M9

Tuesday afternoon...As Wil already said, "I'm coming home"

Monday night: third set of shots went in at 9:00pm, it has been a long day. He will continue to be monitored overnight. He had a lot of chemo today. Feeling pretty crappy, headaches, and sweating through lots of sheets. So far no reaction to smaller shot doses 🙂 . Infection continues to heal although drains will stay in a few more weeks. Hoping we will be home by bedtime tomorrow.

Monday's plan is to give Wil a small dose of the chemo that he had a reaction to, wait 4 hours and give him some more and then wait some more and give him the rest of it. All of this in a controlled setting here on the pediatric ICU. I've been up all night and have decided it's all going to be fine  😊 😳 ❤️ . He will also have several other chemos administered today. This cancer adventure is not for the faint at heart! We are soooo lucky to have so many people thinking and  🙏🏼  for  him. Plus helping out with all the practical stuff since life doesn't stop when you get a cancer diagnosis! And I know many have tickets to the Friends of Kids with cancer show on Thursday. Everyone (and I do mean everyone) is working hard to get him well enough to attend. He will still have his drainage tubes in but will find a way to manage. The kid is tough and doesn't want to let his family, friends, and nurses down. PS ... Could y'all also send out some  🙏🏼  ...

Sunday update: Infection is responding well to new antibiotics. Chemo is causing his numbers to drop. In a holding pattern today with nausea and some puking. Lots of soccer on tv to keep us entertained. Small amount of visitors allowed today, tomorrow back on isolation and chemo regimen. Thank u for all the well wishes and offers to help. Xbox gift cards and Bread co are the only things he is going through like crazy lol. Day 7 of hospital living is interesting, but easier when he is in a good mood. He has 3-5 antibiotic baths a day, we finished all of Stranger things, he dominated monopoly, takes naps, commentates every dang soccer match (the kid is a walking stats generator), and he entertains the nurses. He really misses his friends.

Saturday update: Wil had an allergic reaction last night and stopped breathing. The medical team and  Kristen Josephine  were amazing they bagge d him and gave him shots to open his airway. It was terrifying. He is shaken but doing ok. Very grateful for the amazing staff at the PICU.

Friday afternoon: finally feeling a bit better. Plus he beat his sisters in monopoly    Kristen Josephine  took the night shift so I could actually get a few hours of sleep on the couch. Amazing what 4 straight hours can do. Always moved by the intense love my kids have for each other. Friday morning: still in ICU, some improvement on infection, but pain is still high. Chemo later today. He just wants to go home.