Memorial day 2017

First off thank you to all who gave the ultimate sacrifice for our country.

Wil had a fairly easy night. He slept 6 hours was up for one and then slept for another 2. He was in good spirits this morning and ate a good breakfast. He is complaining of a lot of jaw pain so eating is sometime a challenge.

This afternoon we got out of the house and went for a drive through lone elk park. He still can not sit up for long, but laying down in the car seemed to work. He got a headache from the sun though (UGH).

MUCH love to John A for taking care of my patio. So now I don't have to feel bad when people come to visit and they can not come in the house.

FACEBOOK today:

I am completely humbled by how much love we are receiving and we will pay it all forward. Here is Wil playing soccer last month and if you look over his shoulder you see one of his soccer dads John Ackfeld who is always looking out for Wil, and today was no exception, much love for you today John, much love. Also Brad Macko back here another day. So many great role models for Wil. Kim Roby Husman is an angel on earth which most of Lindbergh already knows, Erica Hoffman Andrea Varone Soto calls and visits and virtual hugs. Thank yous are not enough.

Wil had another ok day, today he has been complaining of jaw pain, everything else is pretty much the same. We are back at the cancer center tomorrow. I am going to try to post on the blog too since I have so many family and friends not on FB ohlerstrong.blogspot.com YES I do have a million things to do and Brandi Lea makes me lists (so I don't forget) but mostly I sit and watch Wil (my momma bears understand;)

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Please follow on facebook

Sorry that I have not updated here as I can not do it from my phone. Wil was in the hospital 2 weeks in April and then on his Make a Wish trip the first week of May. Please follow Wil's story on facebook "Wil Ohler's fight with leukemia #wilswarriors" https://www.facebook.com/Wil-Ohlers-fight-with-leukemia-wilswarriors-174102950041537/

5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built...

Cardinals Fantasy Camp 2018

"Sports is all I've known." - Wil Ohler Cardinals Fantasy Camp 2018 I will never be able to truly explain what this trip meant to me, but I do know what Wil misses most of all about soccer is the relationships. He is a very talented, competitive athlete who was/is wide open on most occasions. He loves everything about sports and soccer in particular. He has more random sports stats and facts in his head than should really be possible. But what he misses the most is the bonding (laughing, jaw jacking, rough housing, inside jokes, etc) that happens when you are part of a team. He just didn't really know it until it was gone and he got to have a small bit of that back on this trip. I will be forever grateful to Dr Rob and the Cardinals, every former Cardinals legend in attendance and every camper who attended who ALL took time to give Wil words of encouragement (as well as donate lots of money for research for teenage Leukemia). A few things about traveling with a c...

ALL in for Wil

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