Memorial day 2017

First off thank you to all who gave the ultimate sacrifice for our country.

Wil had a fairly easy night. He slept 6 hours was up for one and then slept for another 2. He was in good spirits this morning and ate a good breakfast. He is complaining of a lot of jaw pain so eating is sometime a challenge.

This afternoon we got out of the house and went for a drive through lone elk park. He still can not sit up for long, but laying down in the car seemed to work. He got a headache from the sun though (UGH).

MUCH love to John A for taking care of my patio. So now I don't have to feel bad when people come to visit and they can not come in the house.

FACEBOOK today:

I am completely humbled by how much love we are receiving and we will pay it all forward. Here is Wil playing soccer last month and if you look over his shoulder you see one of his soccer dads John Ackfeld who is always looking out for Wil, and today was no exception, much love for you today John, much love. Also Brad Macko back here another day. So many great role models for Wil. Kim Roby Husman is an angel on earth which most of Lindbergh already knows, Erica Hoffman Andrea Varone Soto calls and visits and virtual hugs. Thank yous are not enough.

Wil had another ok day, today he has been complaining of jaw pain, everything else is pretty much the same. We are back at the cancer center tomorrow. I am going to try to post on the blog too since I have so many family and friends not on FB ohlerstrong.blogspot.com YES I do have a million things to do and Brandi Lea makes me lists (so I don't forget) but mostly I sit and watch Wil (my momma bears understand;)

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Breathing is NOT optional-Saturday

Saturday update: Wil had an allergic reaction last night and stopped breathing. The medical team and Kristen Josephine were amazing they bagge d him and gave him shots to open his airway. It was terrifying. He is shaken but doing ok. Very grateful for the amazing staff at the PICU.

5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built...

Happy 17th birthday, Wil!

Happy Birthday, Wil Ohler ! I am so lucky to be your mom. You fill our lives with laughter and show us what real strength is. Yesterday they celebrated with him at the cancer center when he came in for chemo. To say that you should never take life for granted has taken on a whole new meaning. I ask for prayers for the little ones who won't be celebrating another birthday. Send their families your light and energy for strength and peace. For Wil we ask that you do something today for someone else who will never be able to pay you back, spread kindness, love, and of course laughter. # wilswarriors # wilwins

ALL in for Wil

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