Memorial day 2017

First off thank you to all who gave the ultimate sacrifice for our country.

Wil had a fairly easy night. He slept 6 hours was up for one and then slept for another 2. He was in good spirits this morning and ate a good breakfast. He is complaining of a lot of jaw pain so eating is sometime a challenge.

This afternoon we got out of the house and went for a drive through lone elk park. He still can not sit up for long, but laying down in the car seemed to work. He got a headache from the sun though (UGH).

MUCH love to John A for taking care of my patio. So now I don't have to feel bad when people come to visit and they can not come in the house.

FACEBOOK today:

I am completely humbled by how much love we are receiving and we will pay it all forward. Here is Wil playing soccer last month and if you look over his shoulder you see one of his soccer dads John Ackfeld who is always looking out for Wil, and today was no exception, much love for you today John, much love. Also Brad Macko back here another day. So many great role models for Wil. Kim Roby Husman is an angel on earth which most of Lindbergh already knows, Erica Hoffman Andrea Varone Soto calls and visits and virtual hugs. Thank yous are not enough.

Wil had another ok day, today he has been complaining of jaw pain, everything else is pretty much the same. We are back at the cancer center tomorrow. I am going to try to post on the blog too since I have so many family and friends not on FB ohlerstrong.blogspot.com YES I do have a million things to do and Brandi Lea makes me lists (so I don't forget) but mostly I sit and watch Wil (my momma bears understand;)

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Please follow on facebook

Sorry that I have not updated here as I can not do it from my phone. Wil was in the hospital 2 weeks in April and then on his Make a Wish trip the first week of May. Please follow Wil's story on facebook "Wil Ohler's fight with leukemia #wilswarriors" https://www.facebook.com/Wil-Ohlers-fight-with-leukemia-wilswarriors-174102950041537/

5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built...

Make A Wish soccer game

It has been awhile since I updated here. It is much easier to do from Facebook if you can follow his story there. CLICK HERE Wil has been struggling with the effects of chemotheraphy. The chemo has not been kind to his stomach, gallbladder, liver, or head. The good day was his MAKE A WISH faculty soccer game. March 15, 2018 Our family is humbled by the support of Wil and the Make A Wish foundation. Thank you from the bottom of our overflowing hearts, we love being a FLYER! -Thank you to Lori Condellire, Susan Dooling, & Beth Johnston for sharing pictures! A few members of the StepUp of St. Louis Teen Coalition presented a check from their budget for $100 to be used for Wil's Wish fundraising at the soccer game to day! So cool to see these kids in action. Way to go Truman Middle School for organizing such a fun afternoon. # wilswarriors # stepupstl

ALL in for Wil

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