3 years ago FB memory 6/20/17

Love my summers with Wil, 3 years ago he was sister free for the week. We have no news on his test results, thanks to everyone who is checking in on him. We did have some medicine changes to hopefully better manage his joint pain. He is walking a little bit now and we even got out to have snowcones last night.

Please keep a family friend's son, Leo in your prayers as he is battling the same type of cancer as Wil and he received bad news this week. #teamleo

Thanks to all #wilswarriors Barb Downs Brooks Sheri Strebler Holly Pena Jimmy Pickett Laura Barulich Knight Dawn Slade Jerger Brenda D

3 years ago

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Breathing is NOT optional-Saturday

Saturday update: Wil had an allergic reaction last night and stopped breathing. The medical team and Kristen Josephine were amazing they bagge d him and gave him shots to open his airway. It was terrifying. He is shaken but doing ok. Very grateful for the amazing staff at the PICU.

Please follow on facebook

Sorry that I have not updated here as I can not do it from my phone. Wil was in the hospital 2 weeks in April and then on his Make a Wish trip the first week of May. Please follow Wil's story on facebook "Wil Ohler's fight with leukemia #wilswarriors" https://www.facebook.com/Wil-Ohlers-fight-with-leukemia-wilswarriors-174102950041537/

5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built...

ALL in for Wil

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