6/10 sick kids and strong moms #mommabears

Facebook 6/10/17

Ok feeling a little emotional mostly because of the lack of sleep. A friend had shared this commercial (link at bottom) a few months back and as always I cried cause crying at commercials is my specialty, ask my kids I don't cry for the big stuff but commercials ALL THE DANG TIME! Anyway it was touching before but Meaningful now, I have met so many amazing parents at the kids cancer clinic. I've seen them at their best (playing dance dance revolution with their kid hooked up to chemo, singing frozen to their screaming child who doesn't want to be sticked again, grown men and women riding pink scoters chasing their kids IV pole, cuddling in rockers with books and blankies during long blood transfusions, peek-a-boo to distract when accessing a chest port, and on and on) and I've seen their worst (the pain in their eyes when we make eye contact, the choke in their voice when they tell me THEIR story, the screams of frustration when given yet another round of bad news, the tears that spill over when they have to walk and get a wheel chair, the full on crying in the bathrooms when no one can see but other moms with hugs (-side note parent bathrooms on kid cancer floors need a bar and chocolate )...These moms AND dads give me strength every single day. It is not a family that I wanted to join but so glad they are here to guide me.

Things I have learned- "routine medical procedure" should not be a phrase. There is nothing routine about accessing chemo ports, getting chemo, blood transfusions, spinal infusions, bone marrow extractions or even IVs and blood pressure cuffs. Nothing.

"EVERY" cancer is different that's why it is called cancer. Much respect for every story.

CP =cancer perks (from "Fault in our stars") is real. Wil's friend Nick brought over his "extra" Xbox one (everyone who knows me know I HATE video games and systems) Wil has been distracted by the new toy, even if he yells at me that he sucks at playing because I never let him play. And Brandi Lea is a gem for constantly looking up "cheats" for him. I already regret giving him my debit card for purchases! But hey CP 😂 is real... from Bobby And Kim O'Laughlin Miller spoiling him with Xbox headphones or Coach Stephen Androlewicz running to get Fenton Bar and Grill pretzel bites for him at 10 pm when he was having a chemo craving or Jacob Quinn Sandy Quinn for bringing him an inside drone that he likes to chase the dog with! CP is real cause all of us would do anything to just see him smile- thank you dear friends! ❤️#wilswarriors

"Side effects from chemo" should read, this is going to be the most painful thing that has ever happened to your body. Like every bag of chemo should come with an apology note ... I AM NOT KIDDING. I would give anything for this to be me and not him. Like I said said earlier, probably should not be posting with lack of sleep. Wil had a very, very rough night with side effects of the chemo. Painful bleeding like no one should ever have to experience (I'm sparing you details if you can believe that) and bone and joint pain too painful to even roll over in his sleep without making him cry out in pain. Don't get me wrong I'm very grateful for modern medicine but the "side effects" (another phrase that should not be allowed) 😡 breaks my heart for all cancer patients.

And if you have read this far...here is a funny for you. Last night Wil was talking in his sleep and said,"Can I get a slim Jim?" And a moment later, "hey can I get some help opening this?" So at least we have that! Love this crazy boy and all of you for reading this far! #wegotthis

https://youtu.be/HvNF0yFUcx0