"Leukemia time" I am learning is a real thing. Wil suffered migraines before he was diagnosed and he had them under control. Today we spent 7 hours at the cancer center making sure his 3 day migraine was just a leukemia migraine. He had 9 new medications and an MRI and nothing has eased his headache. We are back at home and he is asleep again. He has lost 3 days sleeping. This is not the post I wanted to share.
The post I wanted to share was that his numbers were good enough that we were able to contact the Children's cancer center in Louisville and got permission to travel there. Needless to say it didn't go quite as planned.
The reality is that no matter how much I want something or anything to just be simple "leukemia" isn't going to let that happen. Still grateful that he and I had some time together outside our four walls.
Life is just different now. We grab moments of happiness when we can and literally right now our good moments don't lasted longer than 45 minutes but we are so lucky to not be in a hospital bed so we keep it all in perspective.
We spent 48 hours away from home saw lots of cool things from our car windows including the Louis like slugger tour and a super short visit at the Muhammad Ali museum, to say I didn't cry most of the 15 minutes would be a lie. Wil felt so terrible and wanted to stay so bad but he just couldn't. He still received inspiration from Ali's story and Rudyard Kipling's poem "If." Wil always puts his best face forward, the kid is a fighter for sure!
Wil starts month 2 of chemo on Monday with another surgery. Prayers and positive vibes needed as this month will bring new challenges and new chemo drugs to try and bring Wil's leukemia count to zero. He is still battling terrible bruises, chemo mouth sores, rashes, joint pain, face swelling, and now migraines.
#wilswarriors Stacey Solomon Pratt Diana Biras Maureen Enright Berosky Aunt Irene, Kim Roby Husman Diane Schaefer Barb Downs Brooks and of course Wil's soccer team who never lets him forget they luv him 😍 Lou Fusz
As always thank you so much for checking in on us, we can feel the love lifting us when we need it the most!
Comments
Post a Comment