Nursing degree 6/26/17

6/26/17 Wil's surgery went as smoothly as possible. I still believe that the phrase "routine procedures" should never be a thing cause they may be routine for medical personnel but they are never "routine" for the patient or the people who love them, especially when it involves needles in my kid's spine! They ran a few new tests when he was under and we will get the results in a few days.

He will be going to the cancer clinic four days a week this month. He received three new chemos today, so I have new lists of reactions to watch for from these poisons they are putting in my #babybear 's body to kill the leukemia cells.

Wil came home with a backpack of fluids attached to his port after #mamabear received training on flushing lines, accessing ports, hooking up IV lines, programming pumps, etc...as I told my sisters PEOPLE GO TO SCHOOL FOR THIS! Like I can remember the first mom I saw at the cancer center with her little boy walking around with his backpack... the pain in her eyes was so real I could feel it... NOW I get it...ugh

I'm pretty sure I now have a nursing degree to go with my pharmacy degree ...much love for those that take care of others. And I now have a very clear picture of why mamabears who have "been there done that" say to get out if you can on your down week because the "on" weeks suck.

I'm sure there are plenty of #wilswarriors I'm supposed to be thanking but my brain is full. Congrats to Wil's soccer team that won the U17 US regional cup today in Chicago, WTG Boys!

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Breathing is NOT optional-Saturday

Saturday update: Wil had an allergic reaction last night and stopped breathing. The medical team and Kristen Josephine were amazing they bagge d him and gave him shots to open his airway. It was terrifying. He is shaken but doing ok. Very grateful for the amazing staff at the PICU.

5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built...

Happy 17th birthday, Wil!

Happy Birthday, Wil Ohler ! I am so lucky to be your mom. You fill our lives with laughter and show us what real strength is. Yesterday they celebrated with him at the cancer center when he came in for chemo. To say that you should never take life for granted has taken on a whole new meaning. I ask for prayers for the little ones who won't be celebrating another birthday. Send their families your light and energy for strength and peace. For Wil we ask that you do something today for someone else who will never be able to pay you back, spread kindness, love, and of course laughter. # wilswarriors # wilwins

ALL in for Wil

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