Oh my ... I spent WAY too much time texting this museum http://www.cnn.com/2017/07/10/us/sfmoma-text-art-trnd/index.html . Blessings come in all forms, much thanks to many #wilswarriors Becky Massey Tidwell WoodKristen Patterson Courtney Patterson Becky Brickson Austermann Becky Reid Fitzgerald Erica Hoffman Patti Hauschild Hoffman Cheryl Argent IF you have not received a thank u note from me, please message me, Wil slept a lot last week and I feel like I am catching up but don't want to leave anyone out. I know I haven't given everyone a proper shoutout but please know your generous spirit and kind gestures never go unnoticed.
We are very lucky to have so many people who give us strength when we least expect it.
Wil is having a good day, managing his headache and joint pains with meds...he and I are both learning that a pain day of 4-5 is a good day so get out and enjoy the day. Our new motto is "make a memory." He may not be able to play soccer or go on vacation, but good memories are going to be made while this d@mn disease can take a back seat!
I made this comment on a recent post ... Wil's favorite response when I tell him he can't do some thing is, "Well it's not like I have cancer...oh wait, 😂well we have to try anyway."
He is always trying to make me laugh and surprising me with his insight. Sometimes our plan works out, sometimes it doesn't.
And for the #mamabears that worry more than me, yes he is careful (has a backpack full of essentials) and He has to learn to listen to his body and follow doctor orders on when/where he can go depending on his counts. Research says Leukemia as a teenager/young adult is the most challenging as they are the most likely to be non-compliant and have serious complications. Luckily (ha) he has me for a mom who is as strong willed as he is. It is tough with a chronic illness because a bacteria infection right now could land him in the hospital or worse. We don't ignore that fact, but we do remember life is about living.
So for tonight know he is having a good day and (((hug))) someone who needs it whether they know it or not! We can't make everyone happy, but like Wil says, "We gotta try!"
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