Skip to main content

7/30/17 Strength

Good news!! Wil is awake and planning on going to lunch with friends... send him strength! He had a bad Friday, a "meh" Sat with lots of joint pain, but walking... and this morning he is medicated and motivated to see his friends. #wegotthis
A beautiful person who guided my life in many ways used to pick a word of the year and share it in her Christmas letters. Every year since then for over 25 years I pick a word on New Years Eve and use it as a compass to guide my upcoming year...not sure she know how much of an influence she continues to have over my life.
The picture below is the word I chose for 2017. (I made it with Legos in my sister's basement 😍 while we were doing a NYE challenge from another dear family friend-wow I have awesome people ..it was chosen for the physical things I was going to accomplish this year... but WOW did I need it more than I could have ever imagined.
Thanks to everyone who gives us strength... much love from the Ohlers.

Comments

Popular posts from this blog

Please follow on facebook

Sorry that I have not updated here as I can not do it from my phone. Wil was in the hospital 2 weeks in April and then on his Make a Wish trip the first week of May. Please follow Wil's story on facebook "Wil Ohler's fight with leukemia #wilswarriors" https://www.facebook.com/Wil-Ohlers-fight-with-leukemia-wilswarriors-174102950041537/
5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built...

Breathing is NOT optional-Saturday

Saturday update: Wil had an allergic reaction last night and stopped breathing. The medical team and  Kristen Josephine  were amazing they bagge d him and gave him shots to open his airway. It was terrifying. He is shaken but doing ok. Very grateful for the amazing staff at the PICU.