9/14/17 Meds are in the USA

We heard last night that the medicine is in the US. Nothing official of course, but we are hopeful. So scary to think that this is giving time for the cancer cells to multiply. I'm beyond angry and worried. I do not know how there can possibly be a nation wide shortage of any childhood medication. Keep the positive thoughts and prayers coming we need this medicine this week.

9/15/17
Two chemos today... hoping the one we need is here tomorrow. Homecoming football game tonight and dance tomorrow. He's worried he won't feel well, but resting now. Thanks for all the good thoughts.

9/16/17
Medicine was delivered to the cancer clinic Saturday morning.
Thank you for all the positive thoughts!
14 days without chemo...just frightening

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Please follow on facebook

Sorry that I have not updated here as I can not do it from my phone. Wil was in the hospital 2 weeks in April and then on his Make a Wish trip the first week of May. Please follow Wil's story on facebook "Wil Ohler's fight with leukemia #wilswarriors" https://www.facebook.com/Wil-Ohlers-fight-with-leukemia-wilswarriors-174102950041537/

5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built

Cardinals Fantasy Camp 2018

"Sports is all I've known." - Wil Ohler Cardinals Fantasy Camp 2018 I will never be able to truly explain what this trip meant to me, but I do know what Wil misses most of all about soccer is the relationships. He is a very talented, competitive athlete who was/is wide open on most occasions. He loves everything about sports and soccer in particular. He has more random sports stats and facts in his head than should really be possible. But what he misses the most is the bonding (laughing, jaw jacking, rough housing, inside jokes, etc) that happens when you are part of a team. He just didn't really know it until it was gone and he got to have a small bit of that back on this trip. I will be forever grateful to Dr Rob and the Cardinals, every former Cardinals legend in attendance and every camper who attended who ALL took time to give Wil words of encouragement (as well as donate lots of money for research for teenage Leukemia). A few things about traveling with a c

ALL in for Wil

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