Light the night walk 9.9.17

2 years ago he got to come out of goal and play the field...his teammates worked endlessly to get him the ball AND HE SCORED. Just one of the million reasons I love team sports.

Speaking of teams, please join us Sept 23 for LLS light the night walk in Forest Park. We will tailgate 🚗 at 5:00 (you know it will be a party), ceremony is at 7:00, walk is at 7:30. If you are even thinking about it a little bit JOIN WIL's TEAM so you can receive a lantern🏮 (it will be dark ya know!). September is LEUKEMIA Awareness month we would love to see everyone.

Click on this link, join with Facebook or make an email account, fill out your profile, click enter, they will send you a confirmation email, you will pick up your lantern the night of our walk. No need to raise money, but if you want to share the link on your page every penny counts. 💛https://registration.lightthenight.org/…/team-select…/522547

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Please follow on facebook

Sorry that I have not updated here as I can not do it from my phone. Wil was in the hospital 2 weeks in April and then on his Make a Wish trip the first week of May. Please follow Wil's story on facebook "Wil Ohler's fight with leukemia #wilswarriors" https://www.facebook.com/Wil-Ohlers-fight-with-leukemia-wilswarriors-174102950041537/

5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built...

Breathing is NOT optional-Saturday

Saturday update: Wil had an allergic reaction last night and stopped breathing. The medical team and Kristen Josephine were amazing they bagge d him and gave him shots to open his airway. It was terrifying. He is shaken but doing ok. Very grateful for the amazing staff at the PICU.

ALL in for Wil

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