Skip to main content

5 months

5/18/17 ... 5 months ago our new reality started...cancer definitely amplifies everything in your life. We still struggle every day to find our balance and we know the only way to get past this is to get through. I've told a few friends lately that it feels like we are at the bottom of a lake, we can see the bubbles rising but can't quite get ourselves going in that direction and that when we get to the surface we won't know where anything is.
So for right now we are still sitting at the bottom of the lake and ever so grateful for those of you who are swimming around in the muck with us. For those that send down life lines of food and friendship and hugs and listening even when it's the same ole fishing tale keep sending out those lines of hope.
Much love for all who are swimming or struggling to swim and for those who stop and throw out a line. And for those of you who are at the surface, save a boat ride for me

Comments

Popular posts from this blog

Please follow on facebook

Sorry that I have not updated here as I can not do it from my phone. Wil was in the hospital 2 weeks in April and then on his Make a Wish trip the first week of May. Please follow Wil's story on facebook "Wil Ohler's fight with leukemia #wilswarriors" https://www.facebook.com/Wil-Ohlers-fight-with-leukemia-wilswarriors-174102950041537/
5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built...

Cardinals Fantasy Camp 2018

"Sports is all I've known." - Wil Ohler Cardinals Fantasy Camp 2018 I will never be able to truly explain what this trip meant to me, but I do know what Wil misses most of all about soccer is the relationships. He is a very talented, competitive athlete who was/is wide open on most occasions. He loves everything about sports and soccer in particular. He has more random sports stats and facts in his head than should really be possible. But what he misses the most is the bonding (laughing, jaw jacking, rough housing, inside jokes, etc) that happens when you are part of a team. He just didn't really know it until it was gone and he got to have a small bit of that back on this trip. I will be forever grateful to Dr Rob and the Cardinals, every former Cardinals legend in attendance and every camper who attended who ALL took time to give Wil words of encouragement (as well as donate lots of money for research for teenage Leukemia). A few things about traveling with a c...