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The Nutcracker Prince By Leslie McCarthy South County Times


http://www.southcountytimes.com/Articles-Columnists-c-2017-12-21-202752.114137-sub28364.114137-The-Nutcracker-Prince.html

December 22, 2017
 
For Wil Ohler, a Lindbergh junior, Christmas has always been about nutcrackers.

 
A collection that started because his mom, Tamara, wanted to make sure each of her three children would have legacy decorations for their own homes. For the oldest, it was Santas; for her sister, snowmen. When Wil came along, the girls chose nutcrackers for their baby brother.

 
His collection grew as he did, along with an effervescent personality and a love of soccer. "He's that kid everyone gravitates toward," said Tamara Ohler, who teaches in the PEGS program at Sperreng Middle School. "Anywhere he goes, everyone's like, 'WiLLLLLLLLL!'"

 
Once, he saw a young couple eyeing a nutcracker in a store and overheard them say they couldn't afford it. He had his mom buy it, and then hurried to catch them in the parking lot. It was the start of an annual thing, Wil's nutcracker giveaway to start the holiday season. This year would be no different. Until it was.

 
In May, a sinus infection he couldn't shake, along with a bruise and mouth sores he didn't think to bother his mom about. One day, he's a 16-year-old select soccer player looking forward to summer; the next he and his mom are being told he has t-cell acute lymphoblastic leukemia.



 
"All the air got sucked out of the room," Ohler said. "He looked at me and said, 'Mom, what did I do?' I jumped on the table, hugged him and said, 'You didn't do anything, Buddy."

 
Since then, it's been seven months of intensive chemotherapy: Two steps forward, one violently ill step back. Some of us know leukemia too well.

 
They fought through treatments, mother and son. "You have a lot of interesting conversations you don't anticipate having with a 16-year-old boy," Ohler said. "Somehow, you get through it."

 
One way was to have something to look forward to, and Ohler says she and Wil talked about giving out nutcrackers this year to kids at the Cardinals Kids Cancer Center at Mercy-St. Louis. With an assist from their Lindbergh family — you always get by with help from your friends — they collected more than 50 variations of the toy soldiers.

 
After delivering nutcrackers to the kids, Ohler says she and Wil spent four hours on his Dec. 7 birthday driving to Walmarts, Goodwills and gas stations distributing the rest to total strangers. "He was feeling the side effects," she said, "but didn't want to stop. We just laughed and talked, and kept going."

 
Mission accomplished. And so is his first phase of chemo. Today, Dec. 22, Wil has a scheduled lumbar puncture to check his spinal fluid. "Today will tell us a lot about the next three years," Ohler said.

 
They're optimistic. His mom says Wil has every intention to play soccer by next fall. He soldiers on, this young collector of nutcrackers.

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Sorry that I have not updated here as I can not do it from my phone. Wil was in the hospital 2 weeks in April and then on his Make a Wish trip the first week of May. Please follow Wil's story on facebook "Wil Ohler's fight with leukemia #wilswarriors" https://www.facebook.com/Wil-Ohlers-fight-with-leukemia-wilswarriors-174102950041537/
5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built...

Make A Wish soccer game

It has been awhile since I updated here. It is much easier to do from Facebook if you can follow his story there. CLICK HERE Wil has been struggling with the effects of chemotheraphy. The chemo has not been kind to his stomach, gallbladder, liver, or head. The good day was his MAKE A WISH faculty soccer game. March 15, 2018 Our family is humbled by the support of Wil and the Make A Wish foundation. Thank you from the bottom of our overflowing hearts, we love being a FLYER! -Thank you to Lori Condellire, Susan Dooling, & Beth Johnston for sharing pictures! A few members of the  StepUp  of St. Louis Teen Coalition presented a check from their budget for $100 to be used for Wil's Wish fundraising at the soccer game to day! So cool to see these kids in action. Way to go  Truman Middle School  for organizing such a fun afternoon.  # wilswarriors   # stepupstl