Skip to main content

Jan 3 update

Kristen is heading back to Mizzou tomorrow, we had a great break together. She has a great job in the ER and will spend the rest of her break working.
Kate got out of her boot yesterday and is in a brace. She is cleared for light exercise (bike/swimming), she will start gearing up for her spring soccer schedule.
Wil is going to school tomorrow! His numbers are still all over the place and he is fighting a bit of a cold, but the past week he has felt the best he has felt in over 3 months! It is nice to see him smile and talk about the future, wanting to get back to Soccer. He is still fighting typical chemo crap, tired, headaches (low on blood), and intense bone pain, but he is a warrior. The doc will spend the next 70 days or so figuring out the best combo of chemo to keep his ANC low enough to not allow any new leukemia cells to grow, but not so low that he is unable to fight of infections. Germs are still going to be his biggest enemy. He takes daily MP6 chemo pills, weekly high doses of methotrexate chemo, and will do steroid pulses several weeks, weekly clinic visits, and hospital chemo every 3 weeks. Sounds like a lot when I type it out but it is SO MUCH easier than the past 8 months.
We are all ready our new normal in 2018. My #oneword this year is “next” and I’m sure no matter what meaning I apply to it 2018 will reveal its own meaning! I’m looking forward to what is next!

Comments

Post a Comment

Popular posts from this blog

Please follow on facebook

Sorry that I have not updated here as I can not do it from my phone. Wil was in the hospital 2 weeks in April and then on his Make a Wish trip the first week of May. Please follow Wil's story on facebook "Wil Ohler's fight with leukemia #wilswarriors" https://www.facebook.com/Wil-Ohlers-fight-with-leukemia-wilswarriors-174102950041537/
22 comments
Read more
5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built...
3 comments
Read more

Cardinals Fantasy Camp 2018

"Sports is all I've known." - Wil Ohler Cardinals Fantasy Camp 2018 I will never be able to truly explain what this trip meant to me, but I do know what Wil misses most of all about soccer is the relationships. He is a very talented, competitive athlete who was/is wide open on most occasions. He loves everything about sports and soccer in particular. He has more random sports stats and facts in his head than should really be possible. But what he misses the most is the bonding (laughing, jaw jacking, rough housing, inside jokes, etc) that happens when you are part of a team. He just didn't really know it until it was gone and he got to have a small bit of that back on this trip. I will be forever grateful to Dr Rob and the Cardinals, every former Cardinals legend in attendance and every camper who attended who ALL took time to give Wil words of encouragement (as well as donate lots of money for research for teenage Leukemia). A few things about traveling with a c...
2 comments
Read more