ALL in for Wil

Chemo visit 2/20/18 Day 57 Maintenance cycle 1 Chemo (vincristine) at the clinic today. Was going to wait to post his numbers but they haven’t been posted yet. They have been too high lately so doc will probably increase chemo next cycle. Wil is frustrated with his energy levels as we all had hoped they would increase this cycle. It is a roller coaster physically and emotionally. Our thoughts and hearts have been with Sydney  # SydneysSoldiers  this week as she is in the hospital. I told another parent this week it is so hard to think of all the kids we have lost in just our 9 month battle, hard to understand that when your kid gets cancer you are in a whole community of parents who are fighting hard for their kids and not everyone gets to keep fighting on this side. Sydney is asking for blood donations in her honor. Please make some time this week to donate. Thank u!  # wilswarriors NINE month cancerversary 2/18/18 Nine months ago today Wil was diagn...

Feb 15, 2018 Huge thanks to all the staff and students at  Sperreng Middle School  who stayed after school for the staff vs student basketball game. Money collected will be donated to the  The Leukemia & Lymphoma Society . Great game, teachers rule...although Wil was rooting for the students!  # leukemiaawareness # cancerawareness There is a short video, but I am still struggling how to add video here from my phone. Pretty sure it is because I have multiple accounts.  Winter formal Feb 17, 2018. Wil’s friend and foreign exchange student from Austria. Her name is Rocky and she speaks German. Wil said they both had a great time at the dance. Which for Wil means that he danced as much as possible. The boy loves his music. Most people commented how good he looks... My reply was... His body is constantly changing from the drugs. His hair is still thin in spots but growing and his face is still bloated but body is slimmer than it was, we can final...

Overall Wil had a pretty good week. Aunt Vic took him to the clinic and his numbers were more consistent. He swam a mile last week and was able to hang out with friends. He even went to school for five whole days for the first time in forever! It wasn’t all perfect though. There was puking and bone pain and headaches and leg cramps, but I often don’t think to post that as I don’t want to seem like I can’t be happy for the good stuff.  I’m not a complainer or a worrier. Most people who were my friend before know that my posts mostly included Soccer, wondering where all the laundry came from, the joy of a beautiful sunrise or the excitement when getting the shower temperature right on the first try!  I’m also that Mom who sends her kids to school unless they have a fever. Everything will be fine. Headache? Drink more water. Throat hurts? Drink more water. Upset tummy? You didn’t drink enough water. AND EVERYTHING WAS ALWAYS FINE...until it wasn’t. A routine heada...

When Wil was 8 he started a blog. It was called Wonder Wil...he thought it was a clever play on words since he could post things he was wondering about plus it sounded like a cool super hero name. I figure I am going to honor this by committing to update this blog on Wil at least every Wednesday! Life has gotten busier for me with work, so having a goal of giving an update on Wil every Wednesday seems like a good plan for me. #OurNewNormal Wil had a visit to the Cardinals Kids Cancer Center on Tuesday. Thanks to Big Grandpa and Grandma Doris for taking him. It really takes a village. No matter how many things have to be accomplished there are always people willing to run Wil places, pick up prescriptions, or just hangout with the boy (even when he is puking). Wil's numbers are still all over the place. Just having a hard time knowing what is going on with White blood cells...is he fighting an infection? is the chemo doing its job? I know the doc is working on figuring it all...