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Fine

Overall Wil had a pretty good week. Aunt Vic took him to the clinic and his numbers were more consistent. He swam a mile last week and was able to hang out with friends. He even went to school for five whole days for the first time in forever!


It wasn’t all perfect though. There was puking and bone pain and headaches and leg cramps, but I often don’t think to post that as I don’t want to seem like I can’t be happy for the good stuff. 

I’m not a complainer or a worrier. Most people who were my friend before know that my posts mostly included Soccer, wondering where all the laundry came from, the joy of a beautiful sunrise or the excitement when getting the shower temperature right on the first try! 

I’m also that Mom who sends her kids to school unless they have a fever. Everything will be fine. Headache? Drink more water. Throat hurts? Drink more water. Upset tummy? You didn’t drink enough water. AND EVERYTHING WAS ALWAYS FINE...until it wasn’t. A routine headache turned out to be leukemia. And now nothing will ever be fine again. 

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Please follow on facebook

Sorry that I have not updated here as I can not do it from my phone. Wil was in the hospital 2 weeks in April and then on his Make a Wish trip the first week of May. Please follow Wil's story on facebook "Wil Ohler's fight with leukemia #wilswarriors" https://www.facebook.com/Wil-Ohlers-fight-with-leukemia-wilswarriors-174102950041537/
5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built...

Make A Wish soccer game

It has been awhile since I updated here. It is much easier to do from Facebook if you can follow his story there. CLICK HERE Wil has been struggling with the effects of chemotheraphy. The chemo has not been kind to his stomach, gallbladder, liver, or head. The good day was his MAKE A WISH faculty soccer game. March 15, 2018 Our family is humbled by the support of Wil and the Make A Wish foundation. Thank you from the bottom of our overflowing hearts, we love being a FLYER! -Thank you to Lori Condellire, Susan Dooling, & Beth Johnston for sharing pictures! A few members of the  StepUp  of St. Louis Teen Coalition presented a check from their budget for $100 to be used for Wil's Wish fundraising at the soccer game to day! So cool to see these kids in action. Way to go  Truman Middle School  for organizing such a fun afternoon.  # wilswarriors   # stepupstl