Skip to main content

Wednesday 2 am

Well it’s 2 am and not much sleep going on here. Wil has an infection and although I hope it is nothing and that medicine the doc gave him works quickly, this is exactly how his last hospitalization started. It is so difficult to keep your mind from going to dark places when your child is fighting leukemia. I actually fell asleep and Wil was the one who woke me up because he couldn’t sleep and now I can’t go back to sleep. #cancersucks is such an understatement. On a good day it robs you of your peace of mind. Life of a leukemia patient is not for the weak, mentally or physically. Chemo is not our friend, there has to be a better way.

March 4
A friend reminded me today was 25 years since Coach Valvano gave his “never give up” speech, he passed away about 2 months later. Give a listen when you have 10 minutes. Wil and I have listened to it often...everyone knows Wil doesn’t let a day go by without laughter!


March 3
Several really awesome people have sent this song to me and shared how Wil’s story has touched their lives. Their words squeeze on my heart.

Although he has years left in his fight against leukemia sometimes I need to remember that being a champion isn’t about holding the trophy at the end of the war but giving 100% when you are in the midst of the battle.



Comments

Popular posts from this blog

Please follow on facebook

Sorry that I have not updated here as I can not do it from my phone. Wil was in the hospital 2 weeks in April and then on his Make a Wish trip the first week of May. Please follow Wil's story on facebook "Wil Ohler's fight with leukemia #wilswarriors" https://www.facebook.com/Wil-Ohlers-fight-with-leukemia-wilswarriors-174102950041537/

Make A Wish soccer game

It has been awhile since I updated here. It is much easier to do from Facebook if you can follow his story there. CLICK HERE Wil has been struggling with the effects of chemotheraphy. The chemo has not been kind to his stomach, gallbladder, liver, or head. The good day was his MAKE A WISH faculty soccer game. March 15, 2018 Our family is humbled by the support of Wil and the Make A Wish foundation. Thank you from the bottom of our overflowing hearts, we love being a FLYER! -Thank you to Lori Condellire, Susan Dooling, & Beth Johnston for sharing pictures! A few members of the  StepUp  of St. Louis Teen Coalition presented a check from their budget for $100 to be used for Wil's Wish fundraising at the soccer game to day! So cool to see these kids in action. Way to go  Truman Middle School  for organizing such a fun afternoon.  # wilswarriors   # stepupstl

Coaches vs Cancer

Hard to say how proud I am of this kid. Wil received the 2017 Stephanie Phillips Survivorship Award for outstanding courage and leadership in the fight against cancer. Huge Thanks to Coaches vs Cancer STL. We support their mission of raising awareness and funding. Coach Jason Wolfard at Lindbergh nominated Wil for this award and we are grateful to him and his entire coaching staff.  Staff at Coaches vs Cancer STL doing great work.  Yup, still proud (and let's be real, glad he didn't puke) F-L-Y...E-R-S Here is Wil's speech... Coaches vs Cancer Speech 2017 - Wil Ohler Thank you for this award.Thank you to Coach Wolfard for nominating me. Thank you to the family of Coach Stephanie Phillips, I’m sure her family misses her even more so during basketball season. Cancer is not a team anyone ever wants to join. The week before I received my leukemia diagnosis I was playing a soccer tournament in Chicago. Yes, I had been feeling bad for a very lo...