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Wednesday 2 am

Well it’s 2 am and not much sleep going on here. Wil has an infection and although I hope it is nothing and that medicine the doc gave him works quickly, this is exactly how his last hospitalization started. It is so difficult to keep your mind from going to dark places when your child is fighting leukemia. I actually fell asleep and Wil was the one who woke me up because he couldn’t sleep and now I can’t go back to sleep. #cancersucks is such an understatement. On a good day it robs you of your peace of mind. Life of a leukemia patient is not for the weak, mentally or physically. Chemo is not our friend, there has to be a better way.

March 4
A friend reminded me today was 25 years since Coach Valvano gave his “never give up” speech, he passed away about 2 months later. Give a listen when you have 10 minutes. Wil and I have listened to it often...everyone knows Wil doesn’t let a day go by without laughter!


March 3
Several really awesome people have sent this song to me and shared how Wil’s story has touched their lives. Their words squeeze on my heart.

Although he has years left in his fight against leukemia sometimes I need to remember that being a champion isn’t about holding the trophy at the end of the war but giving 100% when you are in the midst of the battle.



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Please follow on facebook

Sorry that I have not updated here as I can not do it from my phone. Wil was in the hospital 2 weeks in April and then on his Make a Wish trip the first week of May. Please follow Wil's story on facebook "Wil Ohler's fight with leukemia #wilswarriors" https://www.facebook.com/Wil-Ohlers-fight-with-leukemia-wilswarriors-174102950041537/
5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built...

Make A Wish soccer game

It has been awhile since I updated here. It is much easier to do from Facebook if you can follow his story there. CLICK HERE Wil has been struggling with the effects of chemotheraphy. The chemo has not been kind to his stomach, gallbladder, liver, or head. The good day was his MAKE A WISH faculty soccer game. March 15, 2018 Our family is humbled by the support of Wil and the Make A Wish foundation. Thank you from the bottom of our overflowing hearts, we love being a FLYER! -Thank you to Lori Condellire, Susan Dooling, & Beth Johnston for sharing pictures! A few members of the  StepUp  of St. Louis Teen Coalition presented a check from their budget for $100 to be used for Wil's Wish fundraising at the soccer game to day! So cool to see these kids in action. Way to go  Truman Middle School  for organizing such a fun afternoon.  # wilswarriors   # stepupstl