Skip to main content

Wednesday 2 am

Well it’s 2 am and not much sleep going on here. Wil has an infection and although I hope it is nothing and that medicine the doc gave him works quickly, this is exactly how his last hospitalization started. It is so difficult to keep your mind from going to dark places when your child is fighting leukemia. I actually fell asleep and Wil was the one who woke me up because he couldn’t sleep and now I can’t go back to sleep. #cancersucks is such an understatement. On a good day it robs you of your peace of mind. Life of a leukemia patient is not for the weak, mentally or physically. Chemo is not our friend, there has to be a better way.

March 4
A friend reminded me today was 25 years since Coach Valvano gave his “never give up” speech, he passed away about 2 months later. Give a listen when you have 10 minutes. Wil and I have listened to it often...everyone knows Wil doesn’t let a day go by without laughter!

https://www.youtube.com/watch?v=HuoVM9nm42E

March 3
Several really awesome people have sent this song to me and shared how Wil’s story has touched their lives. Their words squeeze on my heart.

Although he has years left in his fight against leukemia sometimes I need to remember that being a champion isn’t about holding the trophy at the end of the war but giving 100% when you are in the midst of the battle.



Comments

Post a Comment

Popular posts from this blog

Breathing is NOT optional-Saturday

Saturday update: Wil had an allergic reaction last night and stopped breathing. The medical team and  Kristen Josephine  were amazing they bagge d him and gave him shots to open his airway. It was terrifying. He is shaken but doing ok. Very grateful for the amazing staff at the PICU.
Post a Comment
Read more
5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built...
3 comments
Read more

Happy 17th birthday, Wil!

Happy Birthday,  Wil Ohler  ! I am so lucky to be your mom. You fill our lives with laughter and show us what real strength is. Yesterday they celebrated with him at the cancer center when he came in for chemo. To say that you should never take life for granted has taken on a whole new meaning. I ask for prayers for the little ones who won't be celebrating another birthday. Send their families your light and energy for strength and peace. For Wil we ask that you do something today for someone else who will never be able to pay you back, spread kindness, love, and of course laughter. # wilswarriors   # wilwins
Post a Comment
Read more