Skip to main content

From Bad to Worse

Our week did NOT get better.


Wednesday, April 4
Back in the ER after a scary morning where his blood sugar crashed (Debbie Deutschmann Klinedon’t know how u do this as this was a terrifying first for us) glucose and IV fluids brought his color back. 

GI Doctor is on his way to talk about his decreased gallbladder function. He is down 26 pounds in 2.5 weeks. Hoping he gets some relief soon.


Wednesday afternoon
Wil is in the pediatric intensive care unit with a few things going on. Looks like they will remove his gallbladder in the morning as chemo has not been kind. His HIDO scan on Monday showed decreased gallbladder function which is contributing to the puking/not eating. His blood sugars have stabilized and they are working on getting him hydrated. Say it with me #chemosucks
Thanks for all the 🙏🏼 and well wishes. We are very blessed.



Thursday morning 7:30 am
He’s in surgery now... send love.

Thursday afternoon
11:00 am Thursday
Wil is back in his room resting. Our surgeon as always did an amazing job. He has five new scars to add to his battle wounds.

Thank you for the prayers, love, and positive energy. Please pay that kindness forward today, especially if you love someone who works the medical field.#wilswarriors

Friday
Friday 3:00pm update, Wil is home. Thanks again for all the well wishes. Hopefully he will be able to rest at home and he’ll let me post some pictures soon! For now pain meds are our friend.


Saturday Morning
Rough night of pain, incisions and headache, but still no puking. Longest streak of no puking in 12 weeks! (Knock on wood)
Sonny, our dog, is happy he is home!





Here is a great article if you or someone you know has faced trauma CLICK HERE

Comments

Popular posts from this blog

Please follow on facebook

Sorry that I have not updated here as I can not do it from my phone. Wil was in the hospital 2 weeks in April and then on his Make a Wish trip the first week of May. Please follow Wil's story on facebook "Wil Ohler's fight with leukemia #wilswarriors" https://www.facebook.com/Wil-Ohlers-fight-with-leukemia-wilswarriors-174102950041537/
5/25/2017 So, Wil is resting at home. It was a bit of struggle balancing him as he walked from the car all the way to the upstairs bedroom, but we made it! None of us were ready for him to leave the "safety" of the hospital. There you have a whole team of nurses with all that equipment to monitor him, so it was nerve wrecking thinking of bringing him home with nothing to help keep an eye on his vitals. After nearly a week of watching machines and carefully watching his pulse, checking his oxygen, and monitoring his heart rate it was hard to fathom going cold turkey. We joked that it was like bringing home your first baby. You can't believe they're just letting you walk out with this fragile young human. Scary. As of today, he's still in a lot of pain, his port continues to bleed, he's had a bloody nose, his bones ache, his back is sore, and is bored already :) However, sleeping in a nice big soft bed has helped...those hospital beds are definitely not built...

Cardinals Fantasy Camp 2018

"Sports is all I've known." - Wil Ohler Cardinals Fantasy Camp 2018 I will never be able to truly explain what this trip meant to me, but I do know what Wil misses most of all about soccer is the relationships. He is a very talented, competitive athlete who was/is wide open on most occasions. He loves everything about sports and soccer in particular. He has more random sports stats and facts in his head than should really be possible. But what he misses the most is the bonding (laughing, jaw jacking, rough housing, inside jokes, etc) that happens when you are part of a team. He just didn't really know it until it was gone and he got to have a small bit of that back on this trip. I will be forever grateful to Dr Rob and the Cardinals, every former Cardinals legend in attendance and every camper who attended who ALL took time to give Wil words of encouragement (as well as donate lots of money for research for teenage Leukemia). A few things about traveling with a c...